This condition is... complicated. We can go through what most people would consider torture, but a lot of us show no outward signs, so you wouldn't even know it. Headaches, dizziness, nausea and a whole slew of our symptoms aren't visible. When we speak up about our symptoms, it can feel like we're complaining, but then if we don't say anything, we run the risk of those symptoms escalating and having to go to the hospital. Every patient is different. Some can have high pain tolerance, while others don't. Some can experience an increase of pain from the heat, while others suffer in the cold, etc. Our energy levels are a daily surprise. One day we might have, and the next, we might experience low levels for a week. You just never know.
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