Wanting to vs Being Able To

So, recently I was asked if I wanted to work, and my answer was: "Yes, I do."

Well, wouldn't you know it that after said conversation, I've been bombarded with seizure after seizure. Is this my bodies way of telling me "No"? I try to rebel, but some days it's hard to even get out of bed, because I'm either in pain, or the world is spinning. SO ANNOYING...

Short, sweet, and to the point.

These Things Drive Me Nuts! (Rant ish)

So I've been having a lot of mindblanks/seizures today, which means I've felt like my head's been floating off somewhere for pretty much the entire day. It's been so stressful, especially since I want to write, but I can't seem to focus enough to get words out.... 

My brain just didn't want to cooperate today, but I hope that tomorrow will be different, and that I can actually focus on things that I need to do. For now, I'm off to float for the rest of the night.

New Developments? Opinions Welcome.

You may know that I finished my draft a few months ago, but now I have no idea what to do. I've edited as much as I possibly could while writing, and can't possibly look at my draft without deleting something integral to the plot. I need help...

So to keep my mind busy, I've started writing a new story. This one is much more of a personal project, because the main theme is Hydrocephalus. I'm three chapters in, and my MC has already gotten sick and gotten shunt surgery. The story is meant to be a contemporary romance, between a Hydrocephalus patient and her movie star best friend. I've had to dig deep to recover memories from my surgeries, to get a feel for what Danielle should go through, because I want this portrayal to be as accurate as possible. My goal is to spread awareness for the condition. 

Update 2022: this story might have changed COMPLETELY. Hydrocephalus is still involved, but it is now a scifi.

My Rough Draft Is Done!

Remember that book I've been working on? Well, after 2 years I finally finished the first phase! I'm now you going to be deep in edits, and I can't wait! I'm so happy, excited, and proud of my work, and I'm that much closer to seeing it on Kindle. It's been a tough road, and I'm not at the finish line yet,  but I see something in the horizon now, and it is awesome to me.  

You Can't Label Pain

When you live with a chronic illness or condition, most people  are understanding, but you're also bound to run into others that aren't. People that either think you're faking it, or exaggerating.

These people should be thankful that they don't have to deal with the hardships that those with conditions love on a daily basis. We may have good days, even good seasons, but unfortunately, the bad outweighs the good in most cases, and we're the ones that have to deal with it. Adding half smiles for others who just don't understand.  Chronic pain is real, even if you get a reprieve for a few months.

My "calm" months are in winter and some of autumn, and I'm virtually pain free until spring and summer. But not completely, believe me.

We may not always look to be in pain. We might just seem really tired (and believe me when I say that pain is exhausting), but we are dealing with something not everyone can.

We are tough cookies 🍪